Roanoke, Va Strollathon

for Rett Syndrome Research

A Stroll and Roll for our Angels

with Rett Syndrome


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Rett Syndrome (RTT) is a debilitating neurological disorder diagnosed almost exclusively in females. Children with RTT appear to develop normally until 6 to 18 months of age when they enter a period of regression, losing speech and motor skills. Most develop repetitive hand movements, irregular breathing patterns, seizures and extreme motor control problems. RTT leaves its victims profoundly disabled, requiring maximum assistance with every aspect of daily living. There is no cure... yet.

 Every 5 hours somewhere in the world, a child is born with Rett syndrome. Rett syndrome affects 1 in 10,000-15,000 live female births and there are over 200,000 girls and women worldwide who have Rett syndrome. Rett Syndrome knows no geographic, ethnic or socio-economic boundaries. Any expectant parent is at risk of having a child with Rett syndrome.

To find out more about Rett Syndrome, please visit:

 
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The IRSF Strollathon is the signature event of the International Rett Syndrome Foundation*. It is a fun-filled event which will help us raise crucial research dollars and also increase public awareness of RTT here in the Roanoke Valley. Ours is one of more than 25 Strollathons to be held this year across the country!  Last year's Grand Total from 21 Strollathons across the country was an incredible 1.1 Million Dollars!
 
*IRSF is the world's leading private funder of basic, translational and clinical Rett syndrome research, funding over $28M in high-quality, peer-reviewed research grants and programs to date. Annually, IRSF hosts the world's largest gathering of global Rett researchers and clinicians to establish research direction and priorities while exchanging ideas and the most recent information. IRSF is the most comprehensive non-profit organization dedicated to providing thorough and accurate information about Rett syndrome, offering informational and emotional family support and stimulating research aimed at accelerating treatments and a cure for Rett syndrome and related disorders.IRSF has earned Charity Navigator's most prestigious 4-star rating.



SAVE THE DATE: 

The  9th Annual

Strollathon for Rett Syndrome

Saturday, September 14, 2013
 
at Wasena Park in Roanoke.
 
Registration starts at 10:00
Stroll begins promptly at 11:00

Countdown to Strollathon 2013